Essential Tremor - Defender Source
Defender Source  

Go Back   Defender Source > Non-Technical Discussions > Misc. Chit-Chat


Reply
 
Thread Tools
  #1  
Old July 21st, 2016, 07:48 PM
Yorkie
Status: Offline
Mark Whitehouse
1989 D90
Member
 
Join Date: Feb 2016
Location: Cochranville
Posts: 229
Registry
Essential Tremor

My 16 year old son has just been diagnosed with Essential Tremor. I wondered if anyone else had experience of this condition?
Reply With Quote
Sponsored Links
Advertisement
 
  #2  
Old July 21st, 2016, 10:47 PM
Tarheeld
Status: Offline
Bill
1985 110
Member
 
Join Date: Dec 2013
Location: Baltimore, MD, USA
Posts: 288
Quote:
Originally Posted by Yorkie View Post
My 16 year old son has just been diagnosed with Essential Tremor. I wondered if anyone else had experience of this condition?

I don't have any personal experience per se. I would push not to medicate unless it's (ET) impeding daily function. A lot of the 1st line medications and even more so the 2nd line medications have cumulative adverse effects especially if someone young subscribes to a lifetime of medications.
Reply With Quote
  #3  
Old July 21st, 2016, 11:04 PM
Arcadeus's Avatar
Arcadeus
Status: Offline
Mark Bichin
97 NAS Station Wagon LE
Member
 
Join Date: Aug 2012
Location: Vancouver, BC, Canada
Posts: 1,209
Registry
Et is usually due to a basal ganglia disorder and sometime can be treated with Dopamine or Norepinephrine agonists... Depending on which part of the system is showing dysfunction. It can sometimes be confused with cerebellar disorders... It will be a trial and error type thing unless it is severe enough that they can pick it up with fmri, dti or pet. The previous poster is correct regarding off target effects from the medication and your son should make the decision based on severity of the tremor. Movement disorders are not really my thing as I primarily deal with cognitive areas but I will do my best to answer any questions or provide information if you ask it.

However the best thing to do would be to find a neurologist that specialises in movement disorders and ask lots of questions.
Reply With Quote
Sponsored Links
Advertisement
 
  #4  
Old July 22nd, 2016, 09:14 AM
edfest
Status: Offline
Ed Mistler
88 D-110 station wagon 2.5TD
Member
 
Join Date: Aug 2015
Location: Pittsburgh, PA
Posts: 35
Finally a thread where I can contribute intelligently...




I agree with the above posts, that if the tremor is mild, then there is no need for treatment. The medications are generally well tolerated (beta-blockers and primadone), but can definitely have annoying side-effects.
The condition does progress over time, but usually slowly and linearly; sometimes very slowly. I have patients that have had ET for 50 years and just now are starting medication.
There is not much testing that is needed for the diagnosis, but at the very least, thyroid, liver function tests and copper levels should be checked. Brain scans are not too helpful for ET, but can be indicated if there is a suspicion of another disease.


If you would like names of specialist in your area, send me a PM with your location, and I may know someone in your area that specializes in movement disorders.
Reply With Quote
  #5  
Old July 22nd, 2016, 11:42 AM
Arcadeus's Avatar
Arcadeus
Status: Offline
Mark Bichin
97 NAS Station Wagon LE
Member
 
Join Date: Aug 2012
Location: Vancouver, BC, Canada
Posts: 1,209
Registry
oops... reread my post... antagonist not agonist. Interesting that they increase overall neural inhibition via a GABA allosteric modulator or a NE antagonist vs trying to regulate the neurotransmission within the ganglionic bodies themselves... i can understand not touching the GLu as its too systemic but i would have thought the GABA is too. Is it the pure insertion problem? Too much off target effects with DA or ACh ant/agonists?

Im in research and dont try to fix individual cases... just curious...
Reply With Quote
  #6  
Old July 22nd, 2016, 06:39 PM
Yorkie
Status: Offline
Mark Whitehouse
1989 D90
Member
 
Join Date: Feb 2016
Location: Cochranville
Posts: 229
Registry
All

Many thanks for responding. At the moment he is only effected when using fine motor skills such as writing. He wants to be chef and has already completed a year of a culinary course. He is finding that ET is being a hindrance at the moment with his fine work not being as neat as others.

We have been and seen a neurologist but I wasn't to happy as no tests were run,just a physical examination prior to giving a diagnosis. He was offered treatment in the form of beta blockers and has been taking these for the past 2 weeks without any noticeable improvement.

Obviously I am not looking for medical advice per se on this thread. I just want to know what experiences people have had and what our options are if at all possible.

Many thanks
Mark
Reply With Quote
  #7  
Old July 22nd, 2016, 07:00 PM
javelinadave
Status: Offline
-
-
Member
 
Join Date: Sep 2003
Location: -
Posts: 5,394
Any of you guys know anything about MdDS treatment?
Reply With Quote
  #8  
Old July 22nd, 2016, 08:11 PM
edfest
Status: Offline
Ed Mistler
88 D-110 station wagon 2.5TD
Member
 
Join Date: Aug 2015
Location: Pittsburgh, PA
Posts: 35
Quote:
Originally Posted by javelinadave View Post
Any of you guys know anything about MdDS treatment?
Unfortunately no. My sister had it, and they treated her for a migraine variant... And she got better. But it's rare, and I'm not sure if her case was typical.
Reply With Quote
  #9  
Old July 23rd, 2016, 11:36 AM
Arcadeus's Avatar
Arcadeus
Status: Offline
Mark Bichin
97 NAS Station Wagon LE
Member
 
Join Date: Aug 2012
Location: Vancouver, BC, Canada
Posts: 1,209
Registry
Ditto on the not knowing... Im more a frontal lobe type guy.... Only reason why. know anything at all about et is because of its connection to the cerebellum which has cognitive function.

I did some quick reading though and it seems to be a problem stemming from connectivity in the entorhinal cortex. It's the area of the brain that takes the two main information streams and combines them... That spatial info and object identification info.... Also known as the what and where paths... Its where your spatial maps are, allowing you to navigate around your enviro...sounds like a perceptual problem vs a sensory one.
Reply With Quote
Reply

Lower Navigation
Go Back   Defender Source > Non-Technical Discussions > Misc. Chit-Chat

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
essential hand tools? tommyd Defender Technical Discussions 35 May 29th, 2011 11:07 AM


All times are GMT -5. The time now is 06:41 AM.


Copyright